Fragile X Syndrome

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FRAXA Research Foundation, Inc.
45 Pleasant St.,
Newburyport, MA 01985
voice: (978) 462-1866
fax: (978) 463-9985
e-mail: info@fraxa.org
web: FRAXA Research Foundation
FRAXA is a national, 501(c)(3) nonprofit organization run by parents and medical professionals. It is made up entirely of volunteers. In 1994, three parents of children with fragile X syndrome founded FRAXA because fragile X research is drastically underfunded. FRAXA's quarterly Newsletter is sent to all members ($25 or more annual donation). FRAXA also publishes a Medication Guide for Fragile X Syndrome, by Michael Tranfaglia, MD, and brochures.