Brain Injury, Brain Disease, Brain Tumors, and Stroke Information
Find Counseling.com has compiled the following list of National Advocacy and Information Resources. The following groups exist to serve the community and help you. We hope you find this list useful. If you know of a National Advocacy or Information Resource that we've missed please let us know. You can call (877) 735-6442, e-mail us at
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Acoustic Neuroma Association
600 Peachtree Pkwy, Suite 108
Cumming, GA 30041-6899
voice: (770) 205-8211 or 1-877-200-8211
fax: (770) 205-0239 or 1-877-202-0239
e-mail:
Contact Form
web:
Acoustic Neuroma Association Web Site
The Acoustic Neuroma Association is a patient-organized support and information organization for those who face or have undergone acoustic neuroma removal. Founded in 1981, the Association is tax exempt. ANA offers understanding and assistance to those experiencing cranial nerve deficits. A quarterly newsletter is published and national meetings are held every other year.
American Brain Tumor Association
2720 River Road, Suite 146
Des Plaines, Illinois 60018
voice: (800) 886-2282
voice: (847) 827-9910
fax: (847) 827-9918
e-mail:
info@abta.org
web:
American Brain Tumor Association Web Site
The American Brain Tumor Association is a not-for-profit organization dedicated to the elimination of brain tumors through research and patient education services. ABTA is the oldest organization furthering this effort, begun in 1973 by two mothers struggling to understand brain tumors. Since then, ABTA has funded over $2 million in research awards to the most prestigious institutions in the United States.
Their services include:
Message Line Newsletter
Physician Resource Listings
Support Group Listings by State
Connections pen-pal program
Fellowship Research Awards
Brain Tumor Survivor's Guide to the Internet
Brain Injury Association
105 North Alfred Street
Alexandria, VA 22314
voice: 703-236-6000
toll free: 800-444-6443
fax: 703-236-6001
e-mail:
familyhelpline@biausa.org
web:
BIAUSA
The BIA is an organization devoted to serving people with traumatic brain injuries and their families. It also seeks to promote Brain Injury prevention as well as research into Brain Injury.
Affiliates:
Brain Tumor Foundation for Children
1835 Savoy Dr., Suite 316
Atlanta, GA 30341
voice: (770) 458-5554
web:
BTFC
Brain Tumor Society
84 Seattle Street
Boston, Massachusettes 02134-9712
voice: (800) 770-TBTS (8287)
voice: (617) 783-0340
fax: (617) 783-9712
e-mail:
info@tbts.org
web:
Brain Tumor Society
Childhood Brain Tumor Foundation
20312 Watkins Meadow Drive
Germantown, MD 20876
voice: (301) 515-2900
toll-free: (877) 217-4166
e-mail:
cbtf@childhoodbraintumor.org
web:
Childhood Brain Tumor Foundation
The Childhood Brain Tumor Foundation was founded by families, friends and physicians of children with brain tumors. Their mission is to support and fund basic science and clinical research for childhood brain tumors. They are dedicated to heightening public awareness of this devastating disease and improving the quality of life for those that is affects. The Childhood Brain Tumor Foundation produces three newsletters annually, Family Retreat Day, provides information, hotline, website and offers advocacy advice through the Childhood Cancer Ombudsman Program.
Children's Brain Diseases Foundation
350 Parnassus Avenue, Suite 900
San Francisco, California 94117
voice: (415) 565-6259
fax: (415) 863-3452
Children's Brain Tumor Foundation
274 Madison Avenue, Suite 1301
New York, NY 10016
voice: 212.448.9494
Toll-Free Patient Support Line: 866.228.HOPE (4673)
fax: 212.448.1022
e-mail:
info@cbtf.org
web:
cbtf.org
Mission: The mission of the Children's Brain Tumor Foundation is to improve the treatment, quality of life and long-term outlook for children with brain and spinal cord tumors.Children's Brain Tumor Foundation
National Aphasia Association
PO Box 1887
Murray Hill Station
New York, New York 10156-0611
voice: (800) 922-4622
fax: (212) 727-9126
web:
National Aphasia Association
The National Aphasia Association is a nonprofit organization that promotes public education, research, rehabilitation and support services to assist people with aphasia and their families.
National Batten Disease Registry
1050 Forest Hill Road
Staten Island, New York 10314-6399
voice: (800) 952-9628
voice: (718) 494-5201
fax: (718) 698-3803
National Brain Tumor Foundation
c/o Janis Brewer
785 Market Street, Suite 1600
San Francisco, California 94102
Information: (800) 934-2873
voice: (415) 284-0208
fax: (415) 284-0209
e-mail:
nbtf@braintumor.org
web:
National Brain Tumor Foundation
National Institute of Neurological Disorders and Stroke
PO Box 5801
Bethesda, Maryland 20824
voice: (301) 496-5751
toll free: (800) 352-9424
TTY: (301) 402-2186
web:
NINDS
The NINDS, an agency of the U.S. Federal Government and a component of the National Institutes of Health and the U.S. Public Health Service, is a lead agency for the Congressionally designated Decade of the Brain, and the leading supporter of biomedical research on disorders of the brain and nervous system.
National Stroke Association
8480 E Orchard Road, Suite 1000
Englewood, Colorado 80111-5015
voice: (800) 787-6537
voice: (303) 771-1700
TTY: (303) 771-1887
fax: (303) 771-1886
web:
National Stroke Association
National Stroke Association (NSA) is the only national voluntary health care organization focusing 100 percent of its resources and attention on stroke prevention, treatment, rehabilitation, research and support for stroke survivors and their families. The largest provider of stroke-related materials in the world, NSA is dedicated to reducing the incidence and impact of stroke by changing the way stroke is viewed and treated. Founded in 1984, NSA receives no government funding and sustains itself through individual donations, memberships and grants.